Carol Pearson is a retired chartered accountant. When her full-time career was cut short by complications from severe endometriosis, she had to re-create herself and she now works as an audit chair for NHS Crawley Clinical Commissioning Group. Carol helps as a research assistant at Royal Surrey County Hospital, is a trustee for Endometriosis UK and co-leads endometriosis support groups in Brighton and Guildford. In 2013, Carol shared her story in a talk entitled ‘Rewriting Red Riding Hood’ at TEDxBrighton.
The World Health Organisation has recently published a new definition of health literacy, describing it as ‘the personal characteristics and social resources needed for individuals and communities to access, understand, appraise and use information and services to make decisions about health’. There are many things I like about this new version.
This is the second of our case studies showing the difference Wellbeing Our Way is making for some of the organisations involved in the programme. Here, Lee Marriott-Dowding reflects on how new opportunities for partnership working are supporting her to develop the James Whale Fund for Kidney Cancer’s approaches to working with people with long term health needs.
This is the first of our case studies showing the difference Wellbeing Our Way is making for some of the organisations involved in the programme. Here, a programme participant reflects on how Wellbeing Our Way has enabled him to become a more influential change agent within his organisation – with inspiring results.
Lee Robinson is the Director of Bright Ideas Consulting, a consultancy providing innovative, evidence-based strategy, research and financial sustainability support for organisations with a social mission. Bright Ideas has recently been working with National Voices and the Wellbeing Our Way programme to develop the organisation’s approach to sector mapping and impact assessment.
Wellbeing Our Way’s first year has been an exciting one. More than 50 voluntary and community sector (VCS) organisations are involved in the programme - developing ways in which charities and community groups can enable people to live well with their long term health needs.
A fantastic thing has happened to me in the NHS over this last month. It involves care planning and it goes like this.
I have a 15 year old repetitive strain injury (RSI) which means it is painful to use computers and keyboards at times. As my work is office based, this has quite an impact on my life. I have been managing it OK-ish and have had support from several different physios and osteopaths at various times, with varying degrees of success. However, during a recent nasty flare up I was sent to meet Chris Williams, a physiotherapist at Sherwood Forest Hospitals.
Malcolm Turner has lived experience of Type 2 Diabetes and describes himself as a ‘helper, carer, facilitator and friend’ to those in his local community. With a particular interest in reducing loneliness and isolation, Malcolm blogs about his experiences of peer support.
My father suffered with disseminated sclerosis, my younger brother with schizophrenia and I was diagnosed with Type 2 Diabetes ten years ago.
Having been offered a mixture of sound advice, misinformation and untruths regarding causes and treatments, particularly of Type 2 Diabetes, I came to the decision that I wanted to offer support and help to other people to manage and understand the treatment of their conditions in the best way for them.
Dying Matters Week has been drawing attention to important issues around care for people near the end of life. The case study below illustrates some of these issues and shows the need for much greater coordination of care and support, as reflected in the work of National Voices members. Thank you to the family in question who wanted us to share this story - we removed names to respect their privacy. Their story is hard to read but important to understand.
This week National Voices is publishing a series of peer support case studies highlighting some of the ways in which charities are facilitating peer support, and the benefits for people living with long term health needs.
These case studies follow the launch of the review Peer Support: What Is It and Does It Work? by National Voices and Nesta, on 14 May. The review found evidence that peer support can help people feel more knowledgeable, confident and happy, and less isolated and alone.