Long Term Conditions

Anya is based in Dorset and has lived experience of several long term health conditions. She worked as a self-management coach, supporting others to self-manage through one to one coaching and group courses, and is involved in local service evaluation, commissioning and development. In this blog post Anya reflects on her learnings from the Four Nations Self-management Summit.

Fiona Carey shares the why and how of co-production: why it matters and how to start co-producing in practice.

Benali Hamdache, Campaigns Engagement Manager at Parkinson’s UK, shares how vital Parkinson’s specialist nurses are for people with the condition and explains why they are increasingly coming under threat.

Web developer Lindsey Fallow, a patient with complex health issues, reflects on NHS Digital’s E-Nursing campaign and the need for healthcare providers to keep pace with technological change to deliver the best care.

Today (14 March) sees the launch of the report of the Neurological Alliance's second patient experience survey. Sadly, it appears that across all measures, we are falling short.

You can view the report here.

Healthcare in the 21^st century is changing: the NHS 'Five Year Forward View' shows that more than ever, people and communities need to be empowered to take control of their health, wellbeing and care. At today’s National Voices Annual Conference, Samantha Jones, the director of the new care models programme, reveals what it is doing to make this a reality.

Last week saw publication of the NHS Planning Guidance 2017–2019. The document is deeply technical in parts, and I’ve read the full 69 pages so that I can provide you with a brief summary of headline elements relating to person centred care and creating the ‘new relationship with people and communities’ set out in the Five Year Forward View

A quest to find, identify and manage differently the ‘top 2%’ of patients is increasingly occupying NHS managers. Don Redding, National Voices Director of Policty explores the consequences.