Alex TLC

Alex TLC provides invaluable support and information to people affected by a genetic leukodystrophy. Established in 2004 as ALD Life, an internationally recognised centre of excellence for those affected by adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN), the charity changed its name in 2019 to become the only charity in the UK that provides support for all those with a genetic leukodystrophy. The organisation was founded by a mother whose sons had both been diagnosed with ALD and who recognised the severe lack of information and support available to families in her position. In a relatively short amount of time, and with very limited resources, the charity has helped just under 2,000 people.