New standard for involving patients and citizens in research

Mon, 24 October 2016

National Voicers responds to the Review which makes a series of recommendations to speed up access to innovative new diagnostic tools, drugs, digital healthcare and medical technologies.

A new publication from National Voices sets a standard for how patients and citizens should be involved in research and innovation.

'Involving patients and citizens: I Statements for research and innovation' was developed as part of the Government commissioned Accelerated Access Review, which  will publish its final report today (24 October 2016). The review makes a series of recommendations to speed up access to innovative new diagnostic tools, drugs, digital healthcare and medical technologies.

National Voices was invited to provide advice to the Accelerated Access Review on how patients and citizens should be involved in research and innovation. Hilary Newiss, chair of National Voices, acted as patient champion in the review.

National Voices worked with voluntary sector organisations and people with lived experience to develop a series of ‘I Statements’ which define, from the patient and citizen perspective, how people should be engaged at every stage of the innovation pathway. They set out patient and citizen expectations, and can be used by those involved in research and innovation to help meet these expectations. They set a standard for what 'good' looks and feels like.

Commenting on publication of the Accelerated Access Review, Hilary Newiss, chair of National Voices and patient champion for the review, said:

The vast potential of innovative new treatments and technologies will only be realised through a strong focus on the needs of patients and citizens.

Patients and citizens must be involved at every stage of research; from priority setting; to research design; to decisions about availability; right through to individual choice in the use of new treatments.

We welcome the Accelerated Access Review’s clear recommendation that patients should be involved in horizon scanning and prioritisation, and that engagement should continue along the whole innovation pathway.

Innovation in drugs, diagnostics and digital technologies is an important factor in delivering person-centred care, and we are pleased to be so engaged in this important review.

Commenting on the 'I Statements for research and innovation', Hilary Newiss said:

The I Statements for research and innovation define the standard to which all involved in the development of new treatments should aspire. They provide guiding principles which will help focus innovation on the needs of patents and citizens.

Download ‘Involving patients and citizens: I Statements for research and innovation’ from the Publications section of the National Voices website.

Download the final report of the Accelerated Access Review.

For further information please contact Andrew McCracken, Head of Communications at National Voices, on 020 3176 0737 or andrew.mccracken@nationalvoices.org.uk.

For further information on the Accelerated Access Review, contact Marc Masey, Senior Press Officer at the Department of Health on 020 7210 5703 or marc.masey@dh.gsi.gov.uk.