National Voices' work for ACC | Unmet Needs
Thu, 12 September 2019
As highlighted in one of the latest Members Update, NHS England/Innovation have agreed to fund National Voices to undertake some research and engagement regarding unmet needs of patients, service users, carers and families to help inform its work as part of the Accelerated Access Collaborative (“AAC”). The AAC brings industry, government and the NHS together to remove barriers to the uptake of innovations across the NHS. One of the decisions the AAC needs to make is which innovations it should support, and which should be prioritised for use in the NHS.
We think it is crucially important that the priorities and unmet needs of people who actually use or depend on services shape this decision-making process. And we are therefore excited that the AAC agreed to help us work with our members to make this happen.
We want to better understand what you already know about the needs and priorities of the people you work with and who you support. We are concerned that this kind of insight needs to be made available to the people who make decisions about innovation and how to accelerate it: what would good emotional support look like in long term conditions care. What role would technology, peer support, or technologically enabled peer support play? These are the questions we need to answer, and we hope that you can help us.
I have been asked by National Voices to pull this work together. I am an independent consultant working in public engagement. I recently left my role as a long-time legal advisor to government and the NHS to support my son who has ASD/ADHD. My personal experiences have only strengthened my desire to ensure public services and support are built around the needs of patients, carers and families.
I am asking you to help us by sharing what you know. We are interested in:
a) Details of current and potential future unmet needs identified by your own beneficiaries, plus details of successful methods you have used to uncover unmet needs; and
b) Any priorities identified by your beneficiaries in addressing those unmet needs.
We understand that your data and insight will come in many shapes or forms (engagement or insight work; website/helpline data)- if you are not sure whether something is of interest to us and the NHS, please get in touch and let’s discuss. We are keen to hear from members large and small, health and care focussed, those that focus on medicines and treatments, and those that focus more on non-medical support.
In our mind, “unmet need” means anything people believe will improve their health and/or wellbeing, including practical things that improve day to day life for them and their families; services; gadgets; digital access to support; emotional and psychological support.
We would also like to take this chance to find out more about what you have done to improve or increase the take up of best practice/new interventions among your beneficiaries. What have you done when the roll-out of best practice/new intervention stalls? How have you managed to reach those groups often overlooked or less able to engage? We are looking for some great examples to help showcase the experience of the voluntary sector.
We would love to have your information by 25rd September and would also like the name of someone who can answer any questions that may arise from a review of your information.
We intend hold a members’ workshop to test and further develop themes arising in late October/early November. We will be in touch again about this soon.
If you have any questions about any of this please feel free to contact me. My email and phone number are also at the bottom of this communication.
Let’s together make sure that we can shape the innovation agenda in the interest of people with health and care needs.