Health Data Summit
National Voices is partnering with Understanding Patient Data to host a summit looking at some of the big issues surrounding health and patient data in the UK.
With NHS England currently working on implementing the national data opt-out, many members of the public will be thinking about their health data for the first time.
Our half-day event is therefore aimed at charities and voluntary sector organisations who might soon be getting questions from their supporters about the opt-out and other patient data related issues.
Understanding Patient Data (who are affiliated with the Wellcome Trust) support better conversations about the uses of health information. Their aim is to explain how and why data can be used for care and research, what’s allowed and what’s not, and how personal information is kept safe.
National Voices will also be using this event to consider how best we can shape the national work happening on patient data to ensure that person-centred care principles are kept as the NHS uses and shares our health data more and more.
Registration and a sandwich lunch is available from 12:30 with the meeting starting at 1pm. We will end at 5pm
The event will start with a “meet the leaders panel discussion” where speakers will discuss some of the biggest issues in health and patient information. Delegates will be able to ask questions and discuss the ethics of sharing, storing and using health data.
Confirmed speakers so far include Tim Magor, Head of National opt out programme at NHS England, and Dr Joanne Bailey, a practising GP and member of the National Data Guardian panel.
Afterwards, Understanding Patient Data will facilitate a workshop which will provide practical tools to voluntary sector leaders on how organisations can have constructive conversations with their supporters about patients data.