Epilepsy Action identified a need to go beyond simply providing epilepsy information. We wanted to work with people with epilepsy and professionals. Our aim was to activate people to learn about their condition, develop their active coping skills and enable shared decision making.
What is Epilepsy and you?
It is an innovative online self-management programme for people with epilepsy. It can be accessed online from a computer, tablet or smartphone, at any time. Over 8 weeks, participants are supported to:
- Access high-quality information and become an expert in their own epilepsy
- Understand shared-decision making
- Try out new self-management skills, including goal setting and action planning, and
- Achieve a better quality of life through self-care
Better sleep and going back to being my happy, positive self – something that has been missing since I experienced my first seizure nearly 7 years ago. - participant