Epilepsy Action has developed My Epilepsy Care Plan, a straightforward and easy to use patient-held care plan for people with epilepsy to complete. The plan is a PDF resource, which can be downloaded online or ordered in hard copy from the charity’s online shop. It explains the benefits of care and support planning for people and carers; how to get started with relevant health and care professionals; and how they may want to share the information with others, whether professionals, friends and family, employers or schools and colleges. The plan includes sections to record details of the person’s care, support and treatment, including medicines, as well as a section which focuses on the person’s individual goals, the steps they will need to take to achieve these, and the support they will need from others, with a space to review and record progress. A Welsh language version is also available.
Epilepsy Action includes the My Epilepsy Care Plan within their suite of resources for professionals, to encourage them to adopt a care and support planning approach with their patients. We also offer an electronic care plan template that professionals can download from our website/SystmOne or EMIS.
Our primary care resource pack contains a section on empowering patients, highlighting relevant guidance and best practice relating to care and support planning. Our resource pack on epilepsy in pregnancy for obstetrics professionals also includes a careplan to record essential medical details to add to a mum-to-be's antenatal notes, along with several factsheets about epilepsy and pregnancy. The charity is currently considering the development of paediatric care plans.
Alongside the provision of advice and information services, Epilepsy Action offers training to enable people with epilepsy and professionals to engage in care and support planning. Motivational interviewing training is being provided for epilepsy nurses, while a new 8 week online self-management programme for people with epilepsy is being evaluated by Coventry University and is using QOLIE-31 (epilepsy specific measure) and the Patient Activation Measure (PAM) to demonstrate patient outcomes.