The Transforming Outcomes and Health Economics Through Imaging (TOHETI) programme worked with clinical staff across Gynaecology and Interventional Radiology at Guys and St Thomas’ NHS Foundation Trust to improve the pathway for women with uterine fibroids.
TOHETI ran a series of focus groups to better understand women’s experiences of the fibroid pathway. The discussions highlighted a lack of reliable information available about treatment options, and a lack of reliable information about recovery from surgery.
As a result, the Trust brought clinicians and patients together to influence not only the care pathway, but to design an information leaflet and video setting out the options available to treat fibroids. This was overseen by a steering group that brought together consultants, radiographers, GPs, and nurses, and was chaired by a patient with experience of being treated for uterine fibroids at the hospitals.
This example was originally featured in the 'Six principles for people and communities: Putting them into practice' published by the People and Communities Board, with support from National Voices.