The National Children's Bureau and Council for Disabled Children have launched a website which enables children and young people to know their rights when making decisions about their healthcare - Get Your Rights. Young people, parents, health professionals and other experts were involved in co-creating the website. This resource was created to improve children and young people’s experiences and outcomes from NHS services by promoting their knowledge and understanding of NHS Constitution Rights.
Work initially began with building an evidence base. NCB carried out research sessions across the country, and focused on groups who face additional challenges when accessing NHS services, including children and young people with learning disabilities, those with mental health issues and children and young people with experience of local authority care. The detailed findings were set out in two reports.
The Get Your Rights website includes sections on rights when Using the NHS, Being Treated Well, Making Decisions, Your Local Area and Wellbeing and Adulthood. Each section uses a variety of media including leaflets, checklists and video. The website also contains a complaints section, giving advice to children and young people on what steps and actions to take if they are unhappy about their care from the NHS. There is then information around other organisations who can help if a child or young person is worried about their care or wants help to make a complaint.
Get Your Rights has a Parent and Carer information section, giving advice for parents to support their child to understand their health and the healthcare system. There is also support for professionals to ensure children and young people have access to safe, effective NHS services, with links to toolkits, e-learning and guides to assist with this.
The feedback from children and young people from both the Get Your Rights website testing and the local resource piloting has shown an increased knowledge about their rights under the NHS Constitution. Children and young people reported that this increased knowledge of their rights empowers them to feel more confident about using NHS services and being involved in decisions about their health and care.