My Adult Still My Child

Here's the shared example

14 Sept saw the launch of, the result of a collaboration between Together for Short Lives, Rainbows Children's Hospice, Murray Hall Community Trust, Browne-Jacobson Solicitors and parents from the East Midlands.

Funded by the NHS England Mental Capacity Act (MCA) Improvement Programme, the website supports parents caring for a person aged 16 or over who cannot make some decisions for themselves, so that parents better understand their rights and options in decision-making as they continue to love and care for their adult child.

Margaret, Iwan's mother said "I instantly liked the website name - it pitches exactly what it's about and recognises parents still are and want to be involved in the life of their adult "child".

The website offers guidance on what the laws says and includes an A-Z jargon buster as well as case studies on families' experiences.

Population groups: 
People nearing the end of life
People with learning disabilities
People with long term conditions
People with physical disabilities
People with rare diseases
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