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SOFT UK was founded in 1990, after it's founders discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders. Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. They provide up-to-date information and non-judgemental support.