Patient Information Forum
The Patient Information Forum (PIF) is the UK membership organisation and network for people working in, and involved with, healthcare information and support. PIF is an independent, not-for-profit organisation, and together with our members, we believe that high quality health and care information and support should be available to everyone. Health and care information isn’t just about leaflets and printed information. It’s much broader than that; it can be hospital signage, appointment letters, websites, informed consent, personal health records, patient education programmes, social media, the list goes on. Good information and support engages people in their well-being, improves their experience and enables them and their families or carers to make choices about their lifestyle, treatment and the services they use. PIF was established in 1997 by a team of patient information managers, when there was little or no support for them in their respective organisations. Our work has evolved in response to the increasing importance of health information, and changes in health policy and practice. However, even today, patient information professionals can often find themselves isolated or working alone within their organisation. The PIF membership body is now over 550 strong, and members come from across all sectors, representing every kind of information and support producer and provider, from the NHS to large international companies, health charities to national health departments, researchers to freelance medical writers. The very breadth of our membership is what makes us an influential voice, heard by policy makers. Our lobbying power has helped to shape many significant policy changes in the last decade, which have raised the profile of consumer heath information.