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Gorlin Syndrome Group

The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers.

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The group is organised by people with the condition and their families. We are supported by a medical advisory panel. It offers guidance and information to individuals, their carers, family and friends with Gorlin syndrome, advances the education of the medical profession and its implications for the family, and promotes research into the causes, effects, treatment and management of Gorlin syndrome.