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VWD Alliance

VWD Alliance is a patient-led community raising awareness of Von Willebrand Disease, supporting families, educating society, amplifying lived experience, and improving access to care so future generations face fewer barriers.

Website
https://vwdalliance.org/
Email address
hello@vwdalliance.org

It was created by people who live with Von Willebrand Disease and understand the reality of delayed diagnoses, misunderstood symptoms, and the need for stronger support. It is building a patient-led space for connection, education, advocacy, and long-term change.