The Gorlin Syndrome Group is a support network offering guidance and information to patients, their families and carers whose lives are affected by Gorlin Syndrome (also known as Nevoid Basal Cell Carcinoma Syndrome).
The group is organised by patients affected by Gorlin Syndrome and their families, with support from medical advisors.
Their aims and objectives are:
- to offer guidance and information to individuals, their carers, family and friends with Gorlin syndrome
- the advancement of the education of the medical profession into Gorlin syndrome and its implications for the family
- to promote research into the causes, effects, treatment and management of Gorlin syndrome.