Hypermobility Syndrome Association
The HMSA is the only charity offering both practical support and Information Standards Accredited health and care information to people who have a hypermobility syndrome. or who are involved in the care of someone with any of the hypermobility syndromes, including Hypermobility Spectrum Disorder (HSD), Joint Hypermobility Syndrome, Ehlers-Danlos syndrome (all sub-types), Marfan syndrome, Sticklers and Osteogenesis Imperfecta. The Information Standard is a certification programme for organisations producing evidence-based health and care information for the public. Any organisation achieving the Information Standard has undergone rigorous assessment to check that the information they produce is clear, accurate, balanced, evidence-based, relevant and up-to-date. This certification gives medical professionals confidence in the reliability of information from our website and publications, helping people with a hypermobility syndrome get the treatment they need. Run by people affected by a hypermobility syndrome for people with a hypermobility syndrome, a number of the HMSA’s staff and volunteers are also medical professionals in their own right, which enables the charity to offer advice and support to relevant professionals (including social workers, GPs, consultants, physiotherapists, Occupational therapists, psychologists and teachers). The Hypermobility Syndromes Association (HMSA) is therefore one of the few charities, offering support both to people with a medical condition and the professionals treating and supporting them.