We are a small UK based charity with over 1000 members whose main aim is to offer support to those who may have, or know someone with, Transverse Myelitis and its associated conditions such as ADEM, Neuro Myelitis Optica (NMO) and others. We are manned by an entirely unpaid voluntary group of people who mostly have TM themselves.
We provide support via Support Group meetings held around the country, and are happy to answer telephone calls from TM patients, their families and friends. We have also held significantly impressive Conferences with world class speakers who are leaders in their field.
We know that TM affects roughly three to four people per million patients seen, so those with the condition may simply never meet anyone else with it and often find that their own GP knows little about it.
We feel it’s very important to make sure that people with the illness are able to meet with and talk to others in the same position since we know that neurological conditions can be extremely isolating.