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Submission to NICE: Improving patient and public involvement in developing NICE guidance and standards

The National Institute for Health and Care Excellence (NICE) reviewed their approach to how lay people can take part in developing their guidance and standards. National Voices submitted to the consultation, commenting on NICE's proposals.

Read our submission here
  • Lived experience
  • Communication and administration

The proposals were:

  • Standardising how we engage with and involve lay people across our guidance and standards programmes.
  • Involving people earlier and keeping them involved throughout the development process.
  • Being clearer on how we find information about people’s experiences of care and how we take account of that experience in our guidance.
  • Recruiting a broad pool of people with knowledge and experience of specific conditions or services. This group can be drawn on as needed to join decision-making bodies.
  • Introducing a formal feedback process. This will enable people who help develop our guidance and standards to be aware of the impact of their contribution.
  • Making better use of social media to communicate with people about our guidance and standards to make it easier for people to communicate with us.
  • Reinforcing the message among our staff that involving lay people is everyone’s responsibility.

If you would like to read this submission in an alternative format, please get in touch.

Read our submission here