Board of trustees

The Board of Trustees determines policy and - together with staff - sets the direction for National Voices.

Hilary Newiss

Chair

Hilary is a lawyer and former partner in a City law firm, specialising in Intellectual Property (innovation, data, patents, brand, copyright). Since leaving the City, has served on several public boards in the science, innovation, health, and ethics fields including The Human Genetics Commission, the National Information Governance Board, Biobank Ethics and Governance Board, the Advisory Panel on Public Sector Information and the Francis Crick Institute. She is currently a trustee of the Natural History Museum, where she chairs the Audit and Risk Committee, and a Director of the Cell and Gene Therapy Catapult. She was the patient champion on the Accelerated Access Review, and now sits on the Accelerated Access Collaborative, helping to put patients at the heart of innovation.

She was attracted to National Voices after poor quality experience in hospital and wanted to try and to improve the experience for everyone. National Voices does that, and she is proud and delighted to be Chair.

Jean Appleyard

Treasurer

Jean is a qualified accountant with broad financial management and operations experience gained primarily in the finance sector. Most recently she was the Group Finance Director at a direct investment and corporate finance advisory firm. Jean is also Treasurer of the Phoenix Cinema Trust and serves as an Independent Member on the Audit and Compliance Committee of the University of Bedfordshire.

Catherine Davies

Catherine Davies is Director of Cooperation and Competition at NHS Improvement. A qualified solicitor, Catherine previously held senior public sector regulatory roles at Monitor, the Royal Free London NHS Foundation Trust, the NHS Cooperation and Competition Panel and the Competition Commission. Prior to this Catherine was in practice with a global law firm, advising on UK and EU merger and competition.

Dr David Crepaz-Keay

David is Head of Empowerment and Social Inclusion at the Mental Health Foundation. His goal is to create strong and effective voices for people directly affected by mental ill-health. His department is responsible for developing and delivering service user involvement, carer involvement, self-management and peer support, and mental health awareness training.

With more than 30 years’ experience in service user involvement, David has previously occupied a number of prestigious posts including chief executive of Mental Health Media, former board member and vice-chair for the Commission for Patient and Public Involvement in Health, founding member of National Survivor User Network (NSUN), and former chair and treasurer of Survivors Speak Out.

Ed Holloway

Trusteexecutive Director of Services and Support at MS Society

What is your role, and what does your organisation do?

The MS Society is the UK’s largest charity dedicated to people affected by Multiple Sclerosis. We’re a major funder of MS research, we empower the MS community to campaign on issues that matter to them, and we provide a wealth of support to enable people affected by MS to live well with their condition. As Executive Director of Services and Support, I’m responsible for all of our services to people affected by MS across the UK. This includes our national services (our helpline, information and financial support) as well as the services provided by our network of volunteer-led groups in communities across the country.

What is your expertise you bring to the board?

I’ve had a number of senior roles with responsibility for research, organisational strategy and impact and now service provision. I think this has given me a good grounding in how to lead organisations to achieve transformational impact for people living with health conditions, and how to make the most of scarce resources. I’m particularly interested in how digital approach can enhance the effectiveness of organisations, as well as the quality, reach and impact of their support to communities.

What do you value about National Voices

I’m a passionate advocate for person-centred care, and think that National Voices has huge value in bringing together such an incredible range of diverse organisations who share that view. By providing a forum for sharing learning, developing new approaches and a strong voice, National Voices can play a vital role in shaping health and social care for the better.

What do you hope we will achieve together in 2020

Whatever happens in the political environment over the coming weeks 2020 is destined to be another year of significant change, and I look forward to working together to ensure that decision-makers hear loud and clear the value that person-centred approaches can bring, and harnessing experience and knowledge from across the sector.

One thing about you that isn’t about your job

My wife has MS, so I’ve seen close at hand the challenges that people can face in accessing services that treat them as individuals and truly meet their needs. We also have two young children who keep us extremely busy, and means that most of my time outside of work is focussed on entertaining two very energetic children.

Jill Worth

Jill is Head of Healthcare Practice with Ordnance Survey. She has 25 years' experience working both for the NHS and on behalf of companies supplying services to the NHS, with extensive experience establishing senior level client relationships and developing new business in the healthcare sector.

Noha Al Afifi

Noha is the Director of Marketing & Communications at Arthritis Action. She has 15 years’ experience in marketing, communications, and public relations in a variety of industries, and has focused on the health and charity sectors for the past six years. She previously worked for a former UK health minister as part of the World Innovation Summit for Health (WISH), promoting healthcare policies serving both the UK population and the rest of the globe. Noha is passionate about translating complex health messages to the public, and is keen to further National Voices’ agenda of promoting person-centred care nationwide.

Olivia Belle

Olivia is Director of Transformation at Versus Arthritis – the charity created following the merger of Arthritis Care and Arthritis Research UK. Much of her career has been in external affairs roles and she is now helping the charity deliver more for and with more people with arthritis. She joined Arthritis Research UK in 2012 from Hospice UK, where she led the development of Hospice Care Week, delivered in partnership with local hospices. She has 20 years’ experience in a variety of communications roles in the charity sector and worked on a number of campaigns, including Dying Matters, Carers Week and the End Child Poverty coalition.

Being passionate about social issues Olivia has chosen to work in organisations spanning a range of issues ranging from children, disability, end of life care and health. She was a trustee of a small mental health charity seeing it through its merger with Mind and the survival of its pioneering mental health media awards.

Red Godfrey-Sagoo

Red is a member of Marie Curie's Expert Voices Group. Two very different experiences of end of life care with close family members led her to become involved with the Expert Voices Group, which provides support and guidance not just to the organisation but to the wider context of end of life care, and where lessons learnt bring forward collaborations for change and advocacy. Professionally, Red brings the knowledge and experience of senior leadership for service delivery across multi-million-pound entities, to organisations reliant 100% on a partner and volunteer workforce with challenging budgets.  In her career, she has consistently tackled tough conversations on service inequalities and systemic failures in creating advocacy and community engagement spaces. She has supported individuals and communities dealing with a wide range of challenges, including health and disabilities, homelessness, education, community injustices, disaster services and the European refugee crisis.

Rick Borges

Rick Borges is the Head of Assessment at the Banking Standards Board. He previously worked at the Professional Standards Authority for Health and Social Care, the Department of Health in the Private Office of a Minister of State, at the National Information Governance Board for Health and Social Care, and in the Private Office of the Director General for NHS Informatics. Rick also acted as an advisor to the Press Recognition Panel, set up following The Leveson Inquiry. Rick has a Masters in law and a postgraduate diploma in law in the UK.

Sally Hughes

Sally Hughes is Head of Health Services Engagement at the British Heart Foundation and leads a UK wide team focused on engagement with senior decision makers across national and local health economies to improve outcomes for people living with Cardiovascular Disease (CVD). She joined the BHF in 2016 from the Multiple Sclerosis (MS) Society where she led policy and external relations programmes which included the award winning public affairs campaign 'Treat Me Right' which focused on improving access to disease modifying treatments.

Sally has over 15 years' experience of senior roles in strategic planning, service improvement and commissioning in the NHS, Local Government and the charitable sector which includes work at a local, regional, UK wide and international level.

Sally is passionate about the long term conditions agenda and wider social issues with her career to date including a focus on improving lived experience for people with long term conditions such as CVD, MS and other physical and sensory impairments in hospital and community settings. She also has a keen interest in mental health and social justice.

Sarah Collis

Sarah has over 30 years’ experience working with and for the third sector. After several years working for the Big Lottery Fund, Sarah turned her passion for supporting communities into direct action as CEO of Self Help UK. Over the last ten years, Sarah has been an active champion of self-care and the power of people to help each other build on their own experience to shape the support they want and need.

Sarah Rae

Sarah is a trustee of Mind's Council of Management. She is an Expert by Experience and trained as a Patient Leader, working to ensure that patients, especially those from diverse backgrounds, are at heart of the decision-making processes. Sarah works with the Cambridgeshire and Peterborough Foundation Trust as a critical friend to improve services to ensure they are person centred and reflect patients’ needs. She is a Non-Executive Director of the East of England Collaboration for Leadership in Applied Health Research and Care, a member of her local Sustainability and Transformation Partnerships (STP) Clinical Advisory Group, a member of the Cambridgeshire and Peterborough STP Mental Health Strategy group as a patient representative, a member of East of England Citizens’ Senate, and is also a patient representative on the Eastern Academic Health Science Network’s ‘Action on Frailty Patient Safety Collaborative’

Sarah Vibert

Sarah has been Chief Executive of the Neurological Alliance since October 2016. Previously she was Director of Strategy and External Affairs at Epilepsy Society. There she was responsible for strategy, business development, partnerships, policy, user involvement, and communications. Prior to working at Epilepsy Society, Sarah held a number of management roles in the charity sector and local government, including working in policy and strategic projects for the Mayor of London and in the Charities Office of HRH the Prince of Wales.