Carers’ experiences of remote care and support models
- Digital health and care
- Lived experience
Learning from the pandemic
During the COVID-19 pandemic, we collectively saw a rapid shift to digital healthcare and a shift within the voluntary sector to using digital support models. In August 2022, National Voices published a resource, Carers’ experiences of remote care and support models: learning from the pandemic, reflecting on how these changes have impacted upon carers.
Drawing on previous work to support those impacted
To inform this work we re-analysed the data we collated for our work on Unlocking the digital front door – keys to inclusive healthcare, Our Covid Voices and Online Peer Support, with a specific focus on the needs, experiences and hopes of carers. We also met with a key group of our members and people with lived experience to discuss, review and input into the findings, recommendations and examples of good practice.
The subsequent resource presents what we heard in our research. Topics include challenges around privacy, the need for support when using digital, access to health and care services, and learnings around online peer support for carers.
Carers’ experiences of remote care and support models: learning from the pandemic concludes with key takeaways and recommendations for government, and for those setting up online peer support for carers.
These include asking the Government to recognise that one size does not fit all when it comes to carers and those they care for, and ensuring that carers and the people they care for have a choice about if and when they access health and care services through remote and digital models.
In our advice for those setting up online peer support groups for carers, we encourage individuals to consider how carers might be able to access respite care in order to take part in these groups, and to consider reducing attendee numbers to enable people to openly communicate.
The funding for this work was provided courtesy of the Commitment to Carers Programme, Experience of Care Team, NHS England and NHS Improvement.