Compassion in Dying is here to help individuals plan ahead, to ensure their wishes will be respected. It is a national charity working to inform and empower people to exercise their rights and choices around end-of-life care.
The Gorlin Syndrome Group is a support network offering guidance and information to individuals with Gorlin Syndrome, and their families and carers.
The Hypermobility Syndromes Association supports people with symptomatic hypermobility, whatever the cause, however mildly or severely they may be affected, and whether or not they are diagnosed.
Ileostomy and Internal Pouch Association, known as IA, is a registered charity supporting people living with an ileostomy or internal pouch, their families, friends and carers.
Involve works closely with organisations to support every stage of the engagement process. The organisation has over 10 years’ experience working with national and local government, public services and others to give people a say in decisions which affect their lives.
The Ménière’s Society is the only registered charity in the UK dedicated solely to supporting people with vestibular (inner ear) disorders causing dizziness and imbalance.
NSUN is a membership organisation and a network of grassroots, community mental health groups and people who have lived experience of mental distress, ill-health and trauma.
The Neurological Alliance is a coalition of more than 80 organisations working together to transform outcomes for the millions of people in England with a neurological condition.
Pain UK is an alliance of charities providing a voice for people in pain. Since being founded in 2011, Pain UK’s membership base has grown rapidly and now supports charities dealing with all manner of painful conditions.
The PBC Foundation is the only UK based organisation that specifically deals with Primary Biliary Cholangitis (PBC), an autoimmune condition which affects the liver.