Results for: ‘node/care.data’

Working together for health service equity for blind and partially sighted people.

For Addison’s Disease Day, on 29 May, the Addison’s Disease Self Help Group raises awareness of the support needed for those living with a life-threatening rare condition, and the role of the expert patient.

Compassion in Dying’s ‘Peer Navigator’ project sought to understand how talking to a peer – someone who has walked in similar shoes to you – can help people get the information they need to make decisions about treatment and navigate support.

National Voices and the Q community are collaborating on a co-design project, supported by the Health Foundation, aimed at developing stronger mechanisms for connecting and supporting service users and patients involved in improvement. Over the next two months we are gathering information and ideas and we need your help.

“Courage calls to courage everywhere and its voice cannot be denied.” Millicent Fawcett, suffragist

Fiona Loud looks at how travel forms such a massive part of the patient experience.

“As someone living with Long Covid…you want somebody to believe what you’re going through.” – Davine Forde

Living in poverty can have a huge impact on every area of someone’s life. In January 2022 the national older people’s charity Independent Age released their new report Poverty in later life, exploring whether people past state pension age enter or exit poverty, and why.

I was invited to speak at the Building Back Fairer: reframing the conversation around poverty and health conference today.