The 'Live your life – living with and beyond lymphoma programme' provides education and support for people who have been diagnosed with and treated for lymphoma. In this blog, the Lymphoma Association's Stephen Scowcroft describes the programme, and how being part of Wellbeing Our Way's supporting self-management community of practice helped the programme's development.
Peter Walsh, Chief executive of Action against Medical Accidents (AvMA) explains why the Government’s proposed cap on recoverable costs in clinical negligence cases will leave many unable to access justice, damage patient safety, and should be of concern to all National Voices members.
Those of us working in the health sector are well-used to discussing concepts like ‘self-management’, ‘shared decision-making’, and ‘patient activation’.
We all know what they mean and that they represent an undeniable good, but how do we make them a reality? How can we ensure that the 15 million people living with long-term conditions in England are supported in becoming truly active participants in their care?
Claire Tomkinson is Wellbeing Development Lead and Policy and Influence Team Lead at Macc, which is the voluntary, community and social enterprise sector support organisation for Manchester. Claire is also Chair of the Board of Trustees at Timebanking UK and believes that we should never ask people what they need without asking what they can give.
Compassion in Dying’s vision is a world where each individual gets the end-of-life care that’s right for them. We are a national charity working to inform and empower people to exercise their rights and choices around treatment and care. This includes supporting people to plan ahead and set out their treatment wishes for the future, in case they later become unable to make or communicate these decisions for themselves.
Dr Helen Seers reflects on our annual conference, at which she presented about Penny Brohn's involvement in the Realising the Value programme. We have uploaded full highlights of the conference to our website, including recordings and downloadable presentations.
Healthcare in the 21st century is changing: the NHS 'Five Year Forward View' shows that more than ever, people and communities need to be empowered to take control of their health, wellbeing and care. At today’s National Voices Annual Conference, Samantha Jones, the director of the new care models programme, reveals what it is doing to make this a reality.