Sam Peaceful-Day lives with Transverse Myelitis and is supported by Anya de Iongh, her self-management coach, to manage her health needs and live well.
Here, Sam and Anya reflect on the difference health coaching has made for Sam’s life.
My new doctor gave me a leaflet. I ignored it, just like I had ignored the depression I was in, due to years of pain and fatigue caused by Transverse Myelitis which makes me one in a million! It was a rare virus that affected my nervous system. But like millions of others my days had become disorganised and shorter - my life mostly put on HOLD.
When Lord Saatchi first mooted his now very controversial Medical Innovation Bill last year, it hardly caused a ripple. Private peers’ Bills rarely get anywhere. However, perhaps because of the combination of Lord Saatchi having friends in high places and his considerable public relations skills and resources, this bizarre Bill still actually might become law. This, in spite of the limited parliamentary time available and the fact the Bill, however well intended, has been denounced as both unnecessary and dangerous by the leading doctors’, patients’ and medico-legal organisations.
It’s been an incredible first six months for Wellbeing Our Way. We’ve collaboratively developed a model of impact which articulates the difference we want the programme to make. Our first workshops have been a great success and we’re well on our way towards beginning our series of POW WOWs – shared learning workshops which will offer a space to collaboratively create the change we want to see.
At a recent conference, I noticed a great deal of time was spent on promoting awareness of bad practices within the health and care sector. This got me to thinking about the vital role of National Voices members, and the wider voluntary sector, in building networks and promoting examples of the good practice which has improved services for, and lifestyles of, disabled people.
Earlier this year National Voices recruited three secondees from member organisations and an associate to help us facilitate workshops for NHS leaders on engaging people who use services and carers. Here, one of our secondees, Marion Janner, of National Voices member, Star Wards talks us through her experiences.
George Rook is chair of his local Dementia Action Alliance and describes himself as ‘living well with dementia’. George’s interests include promoting patient involvement and co-design across local health economies.
This blog was written after George attended a Wellbeing Our Way session in which people with lived experience contributed to the development of the programme’s ‘model of change’ – in other words, what difference do we want the programme to make, and how will we achieve this change?
The 130 or so charity members of National Voices have given us a mandate to press the case for ‘patient involvement’ over the last three years, and with our publication of a new set of evidence, that case has never been stronger.
Who would have thought that the Care Act 2014 and the Health and Social Care Act 2012 could come from the same stable? Two more different beasts are hard to imagine. The Care Act, receiving Royal Assent last week, has been heralded as a milestone in the development of adult social care. A good summary can be seen in this Scope blog.