National Voices collaborates with partner organisations on publications relevant to the inclusion of patient, service user and carer voices in policy debate.

The following are available. Please click on the title to download each publication.

Working together, delivering for patients: a guide to collaboration between charities and pharmaceutical companies in the UK

National Voices, The Association of the British Pharmaceutical Industry (ABPI), September 2015

This short guide is for charities and pharmaceutical companies in the UK, to help them consider the key benefits, issues and risks that can arise when working together.

The aim is to help ensure that collaborations work well for both parties and, ultimately, for patients. 

Ambitions for Palliative and End of Life Care: A national framework for local action 2015-2020

Ambitions for palliative and End of Life Care

National Palliative and End of Life Care Partnership, September 2015 

This framework is aimed at local health and social care and community leaders and sets out six ‘ambitions’ – principles for how care for those nearing death should be delivered at local level. It builds on the Department of Health’s 2008 Strategy for End of Life Care and responds to an increased emphasis on local decision making in the delivery of palliative and end of life care services since the introduction of the Health and Social Care Act 2012.

Realising the Value, September 2015

Realising the Value

This paper is a step towards creating a new articulation of value in co-production with other stakeholders, in order to achieve the wider Realising the Value programme objective of demonstrating the value of people and communities in their own health and care. The ideas set out in this paper will develop throughout the programme to underpin future activities and outputs of the programme.


Peer Support: What Is It and Does It Work?

National Voices, Nesta, May 2015 

Peer Support

Published by National Voices and Nesta, this report is eveidence that peer support can help people feel more knowledgeable, confident and happy, and less isolated and alone. The report also showed that there is a limited understanding of the different forms of peer support, how best to deliver support and the forms of training and infrastructure to get the most impact from it; so, further evidence is needed to fully understand the impact it has on the health service and individuals with long-term health conditions. 

the role of pharmacy in delivering person- centred care

National Voices, Royal Pharmaceutical Society, March 2015

On the 24 February 2015, The Royal Pharmaceutical Society and National Voices held a joint event attended by members of National Voices to explore the role of pharmacy in delivering person-centred care to people with long-term conditions. This short report contains excerpts from the discussions.

National Voices, Think Local Act Personal, March 2015 

My life, My Support, My choice

This is the fifth of National Voices' narratives on person- centred coordinated careIn this narrative, National Voices and Think Local Act Personal (TLAP) describes some outcomes and success factors in the care and support of children and young people with complex lives, from their perspective and that of the people who are important to them. 

National Voices, The National Council for Palliative Care, February 2015

Every moment counts

This is the fourth of National Voices' narratives on person- centred coordinated care. This narrative has been jointly published by National Voices and the National Council for Palliative Care. The narrative describes some critical outcomes and success factors in end of life care, support and treatment, from the perspective of the people who need that care, and their carers and families.

National Voices, Age UK, UCL Partners, December 2014

This is the third of National Voices' narratives on person- centred coordinated care. This narrative describes the way older people want high quality coordinated care to support them, from their perspective. 

National Voices, September 2014

In this report, National Voices members describe how person centred care should look by 2020 and how to achieve it  They flag dos and don’ts for the next government and highlight the contributions that voluntary and community organisations can offer to achieve radical improvements in health and social care. 

This is the second of National Voices' narratives on person- centred coordinated care. This narrative has been jointly published by National Voices and Think Local Act Personal, developed in partnership with NHS England through its voluntary sector Strategic Partners Programme. It describes some critical outcomes and success factors in the care, support and treatment of people who use mental health services, from their perspective. 

Teeth in the NHS Constitution

National Voices, July 2013

National Voices used literature reviews and a comprehensive survey of patiengroups and organisations to establish whether the right set out in the NHS Constitution - to receive clinically appropriate treatments that have been approved by NICE (the National Institute for Health and Care Excellence) – is being delivered in practice. This report identifies a number of barriers and makes a series of recommendations.

Changing Care, Improving Quality 

Academy of Medical royal Colleges, NHS Confederation, National Voices, June 2013

This report says rising demand and limited resources mean the reorganisation of services is essential for the NHS to remain sustainable and to continue providing safe, effective clinical care that meets patients' needs. It calls for meaningful engagement of the public, patients, politicians and health professionals in proactive, well-planned service changes, and highlights the highly influential role for clinicians in communicating a clear case for change.

 A Narrative for Person- Centred Coordinated Care 

National Voices, Think Local Act Personal, May 2013 

This is the first of National Voices' narratives on person- centred coordinated care. This narrative is commissioned by NHS England on behalf of the National Collaboration for Integrated Care and Support. It sets out what matters most to patients and service users and develops 'I Satements' from the perspective of service users.

National Voices, March 2013

On NHS Change Day National Voices issued this report, demainding a proper repsonse to the Francis report and highlighting some of the urgent changes we need to see.

Not the Francis Report: How to Ensure Safety and Quality

National Voices, October 2012

National Voices released this report on Monday 15 October, when Robert Francis QC was due to publish a delayed report into failures at the Mid Staffordshire Foundation Trust in 2005-9. It calls for greater urgency in improving patient safety and care quality and warns of the risks of further patient safety issues arising while NHS planner and providers continue to “wait for further instructions”.

Developing Standards for Health and Social Care Records

Royal College of Physicians, December 2011

Foreword by Jeremy Taylor. This report is the output of a joint working group including National Voices and recommends a national standing committe to oversee the standards to which all patient records should be accredited.

Co-production in commissioning

With NHS Alliance and Turning Point, November 2011

Raising the Bar: driving co-production through clinical commissioning, reports on a workshop held by the NHS Alliance, Turning Point and National Voices to discuss new community-focused approaches to designing local services.

Good governance - long term conditions

Good Governance Institute, July 2011

National Voices helped to design this briefing for NHS commissioning group boards on how to assure themselves they are improving care for people with long term conditions.

Liberating the NHS: what might happen?

NHS Confederation, 2011

Liberating the NHS: what might happen? is the report of a health leaders' summit convened by the NHS Confederation in November 2010 to examine the implications of the government's White Paper for the NHS. National Voices chief executive Jeremy Taylor was a contributor.

Whose NHS is it anyway?

NHS Alliance, June 2010

Whose NHS is it anyway? Sharing the power with patients and the public, is a joint report by the NHS Alliance, National Voices, NAPP, NALM, PiF, Diabetes UK and AHP.

It calls for GP practices and commissioners to be more responsive to communities; for 'co-production' of services with their users; and for extending shared decision making.