Blogs

The 'Live your life – living with and beyond lymphoma programme' provides education and support for people who have been diagnosed with and treated for lymphoma. In this blog, the Lymphoma Association's Stephen Scowcroft describes the programme, and how being part of Wellbeing Our Way's supporting self-management community of practice helped the programme's development.

Those of us working in the health sector are well-used to discussing concepts like ‘self-management’, ‘shared decision-making’, and ‘patient activation’.

We all know what they mean and that they represent an undeniable good, but how do we make them a reality? How can we ensure that the 15 million people living with long-term conditions in England are supported in becoming truly active participants in their care?

Compassion in Dying’s vision is a world where each individual gets the end-of-life care that’s right for them. We are a national charity working to inform and empower people to exercise their rights and choices around treatment and care. This includes supporting people to plan ahead and set out their treatment wishes for the future, in case they later become unable to make or communicate these decisions for themselves.