Results for: ‘node/care.data/page/16/info@nationalvoices.org.uk’

The United Kingdom Acquired Brain Injury Forum (UKABIF) aims to promote better understanding of all aspects of ABI; to educate, inform and provide networking opportunities for professionals, service providers, planners and policy makers and to campaign for better services in the UK.

The Thyroid Trust, also known as TTT and Thyroid Friends Network, was set up by a group of thyroid patients who have been meeting regularly and arranging talks with expert speakers since 2010.

SUDEP Action is dedicated to raising awareness of epilepsy risks and tackling epilepsy deaths including Sudden Unexpected Death in Epilepsy. It is the only UK charity specialised in supporting and involving people bereaved by epilepsy.

The Specialised Healthcare Alliance is a coalition of patient-related groups and corporate supporters with a strong record of campaigning on behalf of people with rare and complex conditions in need of specialised care.

SignHealth is a charity dedicated to making sure Deaf people get the same sort of access as hearing people to healthcare and health information.

Sickle Cell & Young Stroke Survivors is a registered charity, that holistically supports children, young people and their families affected by sickle cell anaemia and childhood stroke. The aim of the charity is to holistically support and educate children, young people and their families affected by sickle cell disorders and childhood stroke.

RSI Action is the national charity supporting those with RSI. The organisation aims to facilitate the prevention of the conditions known collectively as Repetitive Strain Injuries (RSI) in the UK, and facilitate the relief of sickness, hardship and distress amongst those suffering within the UK from RSI conditions.

RACC UK is the UK’s only patient-run charity for patients and families suffering from Rare Autoinflammatory conditions.

The Pemphigus Vulgaris Network is a voluntary, not-for-profit, group started in 1997 to provide information and support for people living with pemphigus and their relatives, friends and carers.

PCD Support UK was formed in 1991 to provide support to patients and their carers who have, or are suspected of having, PCD.